An Introduction to Patient Reported Outcome Measures (PROMs) in Trauma

Increased survival rates from traumatic injury have resulted in more people living with disability and reduced quality of life. To understand how peoples’ quality of life is affected following a traumatic injury and the effects of that injury on their health and wellbeing, it is important to capture patients’ perspectives of their own health. Patient Reported Outcome Measures (PROMs) are questionnaires, completed by patients, which can be used to measure the symptom burden associated with trauma and its treatment, and impact on quality of life. PROMs have a wide variety of uses which are relevant to trauma. In a research setting, PROMs can be used to assess the effectiveness of treatment and burden of disease. In a clinical setting, PROMs have the potential to inform and guide patient-centred care and clinical decision making. Collected as part of trauma registries, PROMs can be used at an aggregate level to inform improvements and uphold the quality of trauma care. This literature review explores and summarise the key current and potential future uses of PROMs in trauma research, routine clinical practice and registries. Author’s email addresses: Grace M Turner,*: G.Turner.1@bham.ac.uk Anita Slade: A.L.Slade@bham.ac.uk Ameeta Retzer: A.Retzer@bham.ac.uk Christel McMullan: C.McMullan@bham.ac.uk Derek Kyte: D.G.Kyte@bham.ac.uk Antonio Belli: A.Belli@bham.ac.uk Melanie Calvert: M.Calvert@bham.ac.uk *Corresponding author: Grace M Turner | Murray Learning Centre, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK | +44 (0) 121 414 5463 | G.Turner.1@bham.ac.uk Conflicts of Interest and Source of Funding This review was funded by the National Institute for Health Research (NIHR) Surgical Reconstruction and Microbiology Research Centre (SRMRC). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health. GT is funded by the NIHR PDR programme (PDF-2017-10-047) and the NIHR SRMRC. AR is funded by the NIHR SRMRC and employed on another project funded by Macmillan Cancer Support (grant: 5592105). DK is funded by the NIHR PDF programme (PDF-2016-09-009); Macmillan Cancer Support (grant: 5592105); NIHR Birmingham Biomedical Research Centre and the NIHR Surgical Reconstruction and Microbiology Research Centre. AS is funded by the NIHR SRMRC and is working on another project funded my Macmillan Cancer Support (grant ERN-17-0085). MC has received personal fees from Ferring and chairs the ISOQOL Best Practice for PROs in Trials Taskforce. © 2018 Lippincott Williams & Wilkins, Inc.

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